Is ALS gene therapy China available for SOD1-related ALS?

Yes. Gene-modifying therapy using tofersen is associated with a supervised access pathway at Shanghai Jiao Tong University Affiliated Ruijin Hospital Hainan Hospital in the Hainan Boao Lecheng Pilot Zone. Patients must meet the applicable medical and access requirements.

How much does ALS gene therapy China cost?

The estimated cost is approximately US$98,600 (¥700,000) per session. Confirm final pricing and exactly what the treatment fee covers with the hospital.

Who may qualify for ALS gene therapy in China?

Patients with ALS caused by SOD1 gene mutations may be considered. Final eligibility requires assessment by the treating medical team and review of the patient's medical records.

Is ALS gene therapy China approved nationwide?

No nationwide approval should be inferred from availability through the Hainan Boao Lecheng pilot-zone pathway. Patients should distinguish pilot-zone access from general national authorization.

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Gene-Modifying Therapy for ALS in China: 2026 ALS Gene Therapy China International Patient Guide

ChinaCureLink

Thu Sep 03 2026

6 min read

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